Health Care System Fails Serious Mental Illness (SMI) and Severe Emotional Disturbance (SED)

The health care system has failed to address the needs of persons with serious mental illnesses (SMI) and serious emotional disturbances (SED). 4% percentage of the adult population, age 18 and over, living with SMI. 1 in 4 individuals with SMI live below the poverty line. 25x the suicide rate for individuals with mood disorders such as depression or bipolar disorder is 25 times higher than among the general population. 1 in 10 youths in SAMHSA's CMHI program had attempted suicide prior to receiving services. 2 million approximate number of persons with SMI admitted annually to US jails. Only about 1 in 3 people with mental illness in jails or prisons is currently receiving any treatment. 7% to 12% of youth under age 18 who have SED.

The Way Forward: Federal Action for a System That Works for All People Living With SMI and SED and Their Families and Caregivers

The Interdepartmental Serious Mental Illness Coordinating Committee (ISMICC) has released a report detailing a plan for helping adults with serious mental illness (SMI) and children and youth with serious emotional disturbances (SED). The report includes current needs of individuals with these issues, advances in clinical care, as well as extensive recommendations for improving the way we address these challenges. (Quoting NAMI California email dated January 18, 2018)

Press Conference

Members of the ISMICC discussed the recommendations in their first Report to Congress during a press conference on Thursday, December 14, 2017. The findings and recommendations in the report have the potential to spur federal action to revolutionize behavioral health care by increasing access, quality, and affordability of care. (Quoting

Full Report
Executive Summary

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NAMI’s Peer-to-Peer course introduced me to the concept of mental health recovery and gave me HOPE. As a NAMI Provider Education presenter and In Our Own Voice speaker I share my story of mental health recovery. You can see my speech here.

NAMIWalks provides NAMI Orange County with 1/3 of their operating budget, enabling them to offer free mental health educational programs, meetings and support groups.

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Who Do I Care For, Really?

Definition of caregiver: a person who provides direct care (as for children, elderly people, or the chronically ill)

I spend way too much emotional and physical energy toward the care of others, aside from myself. Why do I care so much, too much? No doubt due to my upbringing, to my relationship to my parents – trying to please, to earn their love and approval. Why, after decades of therapy, do I still feel and act as an enmeshed parentified daughter? I’ll just leave that question hanging there for now. Not up for explaining alcoholic family dynamics. Too tired. Adult Children of Alcoholics has a good concise description.

Who do I really care for? Good question. My husband and my son are the most important people in my life. I have devoted a great deal of time and energy trying to help my son. Too much, perhaps. No, not perhaps, without doubt. Now, I need to step back, to neglect a bit, to allow for more independence. Time to do just enough. To be just good enough. Just enough. Enough.

My sister, trying to help me set boundaries and stop taking on too much emotional responsibility, reminded me that I am not our parents’ caregiver. They are in memory care. The memory care facility provides their daily care. That’s what we pay them for.

I am not my parents’ caregiver. I am my son’s caregiver, and even he could use less of my care.

Now that my parents both have dementia and live in a memory care community, aside from being their daughter, my role is to be their power of attorney. With my sister, I make decisions on their behalf. I pay their bills. I coordinate their care, which is not the same as giving them direct care.

Before my mother’s stroke, I did not visit my parents regularly. I did, though, talk and play Words with Friends with my mom daily. I miss communicating with her. I miss my parents as they were before dementia. I’m grieving.

Living with bipolar disorder, I must take care of myself. This season, springtime, is a time when I often start mood cycling. I’ve feel particularly vulnerable and fatigued. The longer sunny days trigger hypomania and irritability.

On a more positive note, in January and February and again next week, I’ve been a NAMI Provider Educator for the staff at the hospital where I received both inpatient and partial day treatment twelve years ago. I enjoy educating their staff on what it is like to live with mental illness and to be in mental health recovery. Wish me well next week. We’re increasing the time that we devote to our personal trauma stories, so I must rewrite mine. I may edit my In Our Own Voice presentation for content, or I could take a look at what I have shared here.

Am I Still a Mental Health Blogger?

Self, Wife, Mother, Caregiver, Writer, Blogger, Mental Health Advocate

What defines being a blogger, specifically a mental health blogger? Must I write regularly or frequently? Must I always write about mental health? What if that is not my focus ALL the time? What if I’m so busy that living with bipolar disorder is not in the forefront of my mind? What if I’m overwhelmed by my life circumstances? What if I’m simply taking a break?

I’m not the most disciplined writer. Never been one for discipline; though, I do brush and floss my teeth every night. My house is a mess – dusty and cluttered. I bathe or shower (I prefer to bathe) at least once a week. (You are probably disgusted by this admission. I try not to move too much, so I don’t sweat and get stinky. Yes, I know I should exercise daily. And, eat better. Just because I know better, doesn’t mean I do better.)

Followers of my blog say they miss me when I write once a month, and not more often. Not sure if it’s nice to be missed, or if it’s stressful, if I have an obligation to write.

No, I have no obligation to write.

That’s why I blog.

It’s mine. All mine.

Yes, I interact with others here and enjoy doing so. I respond to those who comment.
Recently, though, I’ve been busy with life. My illness, bipolar disorder, hasn’t been the focus of my blog. I’m fairly stable. My symptoms are more or less in remission. But, the concepts of remission and recovery can mislead. Serious mental illnesses, like bipolar disorder and schizophrenia, are chronic, lifelong brain disorders. You can live with them. Medications can help you treat the symptoms. But, the brain disorder remains.

To stay stable, I must be careful. I must plan for how certain circumstances affect me.

Last month I presented and next week I again will present as an individual living with mental illness for NAMI Provider Education at the hospital where over a decade ago (12 years now) I was treated two weeks inpatient and for a few months in their partial hospitalization program until I got bored.f

I get overstimulated in social situations and must recover. I cannot sustain that level of social functioning without paying a high price – psychiatric instability, hypomania and subsequent depression, mood cycling. So, I must keep in mind that I will need downtime afterwards – time to recover.

So… I started writing this piece wondering about the effects of my recent lack of “mental health” blog posts. I’ve also slacked off reading and commenting on others’ blogs. Sorry, folks.

I’ve been too busy doing taxes (scanning tons of receipts), driving my son to and from school and numerous doctors’ appointments (unfortunately, he isn’t motivated to get his driver’s license anytime soon & knows we didn’t get ours until we were 18 & 19), and making sure my parents are happy.

When I haven’t been busy, I’ve been exhausted – too exhausted to write, to read, to do anything verbal. Instead, I took up doing jigsaw puzzles on my iPad – enjoy that they are visual, non-verbal, and engage my mind.